I Still Do: Loving and Living with Alzheimer’s Dementia

Judith Fox is a writer and photographer based in Southern California. Eleven years ago, having just been married to Dr. Edmund Ackell 3 short years, Judith’s multi-talented husband was diagnosed with Alzheimer’s disease. This strong, intelligent man, who has been a surgeon, pilot, artist, athlete and president of Virginia Commonwealth University is now the subject of Judith Fox’s book “I Still Do: Loving and Living with Alzheimer’s Dementia” published by powerHouse Books in Oct. 2009.

She says in an interview posted on the powerhouse website, that as a photographer, taking pictures of him was another way of loving him. In fact, it allowed her to see him more clearly.

I am always on the hunt for photographic memoirs centered around end of life issues, and this book certainly captures end of life themes. The book is 128 pages, with intimate photographs of her husband and thoughtful insights by the author to accompany the images.

Judith writes, “Alzheimer’s doesn’t announce itself with an ache, a pain, a limp. It rolls in like a fog. It dissipates. It leaves space for denial.”

How often I hear this when speaking with families whose loved ones are in the end stages of dementia. “When did the symptoms start?” I’ll ask, and always there is a hesitation. It is a fog, so gradual and faint at first, most don’t even notice it’s presence.

I find this photograph from the book extremely poignant when coupled with Judith’s words. The illusion is as if the rest of the “real” Ed has vanished, with only a hand remaining. Next to the photo she writes that dementia, “Unveils the person we married and then replaces him with someone who doesn’t know our name”.

There are tender moments captured, where Ed sleeps with their cat, or rests in a chair. But there are also photo’s that you see in his eyes a question. As though he is not quite sure what’s occurring, or even who the photographer is.

She is very honest in her accounts as caregiver. I particularly resonated with her thoughts on delirium. She writes, “Who thought up the innocent-sounding euphemism ‘sun-downing’ to describe the anxious and erratic early-evening behavior? Let’s be honest, here. How about ‘howling at the moon’? How about ‘clawing at the walls’? How about the ‘twilight zone’? ‘Sun-downing’? PLEASE. ”

Overall the book places a soft focus on a devastating disease. Although honest in her account, one walks away with the feeling of her love and commitment to this man, instead of feeling doomed and exhausted from the disease. I suppose that’s why the title is “I Still Do”.

To see more photos, you can check out a series of 13 of the photographs located at Judith Fox’s photography site here. To hear the author speak and read a few passages go to the powerHouse website here.

Cross published at http://arts.pallimed.org/2010/01/i-still-do-loving-and-living-with.html

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s